As things settle down for me and my family (big move coming up), i hope to have more time to focus on posting
Since it's been awhile I'm going to do another introduction.
33 year old dad, spouse, non profit founder and Executive Director, years of non profit experience including board experience. I also engage in community organizing and political work.
My daughter Joy is a total Joy. She is 6 years old and on the Autism Spectrum. So is my wife. I have Sensory Processing Disorder, kidney problems, narcolepsy and sleep disorders.
I also have severe neurologically related bladder and bowel incontinence. I leak urine and also have full blown bladder emptying accidents. I get no warning it's going to happen. My bladder constantly spasms/contracts, my urethral and bladder sphincter don't close tightly and both can and do open during my bladder spasms.
I am also incontinent of solid stool. Most people who deal with bowel incontinence deal small amounts of fecal leakage usually related to a medical condition like IBS or chrons.
With me whether my stool is hard, normal, soft, or liquid, It will be an uncontrolled bowel movement. I have 1-3 a day but if I have loose stools, I can have 6 or more BMs. My record is 12. I have had them in my sleep which is embarrassing. No way to describe walking to the store and all of a sudden, be having a solid stool bowel movement in a diaper and be thankful it's not underwear.
Just like with my bladder, I get no warning I'm going to poop and once it starts, it does stop till I'm empty.
There is a neurological deficit that prevents me from recognizing I need to use the bathroom and sends signals to sphincter muscles telling them to relax at inappropriate times...
I got throw 200 prevail brand diapers which are medicaid covered and delivered to my door.
As a kid I also dealt with seizures, developmental delays, moderate drooling, problems with self care, hypertonia, and of course the incontinence and other issues. Growing up as a kid, who peed and poop them selves constantly and who had to wear diapers. Who cried at the drop of a hat, who couldn't use silverware until I was 6 and who had to wear a bib and get my face wiped off longer than that...who'd get so wrapped up in doing something like participating in a birthday party that I wouldn't be aware I'd pooped until a kid would loudly announced that I had pooped and that I couldn't come to his next birthday because I was a baby like his little brother. I also had trouble dressing myself and was 9 before I learned how to tie my shoes. I had to drink from a sippy cup till I was 7 and had a specially made orthodontic pacifier that I used when I was home or out somewhere but never at school. It was to help improve muscle tone in my face, mouth, and tongue. Help with talking, lessen the drooling, improve eating and drinking etc.
I rarely went to sleep overs or camps because one I was embarrassed and didn't want the hassle of having to ask an adult outside my home to change my diaper
Sooo...what else? I grew up in fostercare after age 6 which was a horrible experience. Lots of abuse and neglect. I had no friends and was constantly teased and shamed. In quite a few homes, I had to sleep in a room with babies/toddlers because no one wanted to deal with the smell and the only ones who didn't care were the babies. Imagine a 7 year old kid with his old raggedy weighted elmo blanket sleeping in a toddler bed...that was me.
My mom had mental health issues and was abuser as a kid severely. She got into crack coca inevitably but quite when she found out she was pregnant which wasn't until way into the second trimester.
I was coming out feet first and had my umbilical cord wrapped around my neck depriving me of oxygen.
My mom was my hero. She never gave up and she died having witnessed me getting married to my wife. We were extremely close and loved each other so much.
I ended up naming my daughter after her and I always lived close to her. When I got the unexpected call that she had been found deceased, I walked 5 blocks to get to her house on the same street.
I'll close this off by saying a few more things.
I enjoy computers and technology. I dabble in Web building. I love cars. Netflix. Christmas. Good food. Radical social justice and community organizing. I love a capella music and writing.
I value true friendships. Older people with stories. The beach and the woods. I love the winter and summer equally. I love refinishing wood furniture and have a few pieces in my home in did. I love retro gaming. NES/SNES/N64/OLD DOS computer games. I'd love to build a arcade machine and load it with an emulator and all the games.
I'm fixing up my 88 cadillac seville. Started with mechanical work including new engine. Now moving on to the interior.
I'm kink and sex positive and nothing phases me.
I value family and friends above all. I have over 3000 friends on Facebook and I have had conversations at minimum with each one.
I enjoy reading and have over 200 books on my book shelf.
Most embarrassing moment: my daughter still wets the bed and I'm glad it's not that bad and it's only nocturnal enuresis and not severe like my day and night issues but one night I ended up with both pee and poop in my diaper. My wife wakes me up to tell me that I had pooped and needed to change my diaper. I was sicker than I had been in a long time and could hardly move so for the first and only time, she changed my diaper. While she doing that, my daughter comes in the room and I have my legs up, butt exposed with poop on it. My wife had forgotten the wipes and she was kinda stuck there holding my legs up. The only option was to have my daughter go grab them. She does and then as she is closing the door, she asks: daddy...why do you still wear diapers? We talked later and I explained for the first time since she was about 3, why I needed to wear diapers.
Anyways, that's me. Post about you in the comments. Who are you? Talk about your incontinence but would also love to read about other stuff too.